I need the IV rehydration or I'll be sick for three times as long. I have POTS too. Fainted daily for years! It was miserable when I got dragged to ERs because either they thought they understood POTS and argued with me or they didn’t understand POTS and had no clue what to do. So unfortunate this not so rare disorder still is so misunderstood in the medical community. I have POTS too, but I also don't pass out at all. I have all the effects of passing out (jumping heart rate, blood pressure, tunnel vision, and shortness of breath) but never pass out. It's convenient honestly and I feel really lucky that I don't. Aliyah Sylvester I sometimes wish I could though. There have been maybe 3 or 4 times where I was literally seconds away but didn’t pass out. That feeling is absolutely awful. I do worry though that if I pass out one day, then it won’t stop. I know this is really strange but could any of you tell me how you went about getting diganosed/brought up EDS with your doctor? I have EVERY symptom but I'm unsure of how to bring it up, I mentioned it when I was at the hospital once but was essentially ignored. Kayla Marie Wheelock I literally just say something like I have learned about this condition and I have many of the symptoms. Do you think it’s something I could have, should I see a specialist, etc 🙂
Grab it here: Nurse Will Give Medical Advice For Tacos Shirt
Review Nurse Will Give Medical Advice For Tacos Sweater
Just be very confident but don’t mention google. Lol. I personally had symptoms and my mom’s friend who’s daughter has EDS and she said to my mom it sounded like I had it. We did more research and we were thinking it too. Then a physical therapist asked if I had heard of it because my neck was so hypermobile. I was lucky to have an amazing pediatrician but got a horrible geneticist. Then I got in with a good one (do your research) and was officially diagnosed. Kayla Unick Yes! I don’t know anyone with EDS without POTS. POTS is a secondary condition to EDS so I guess that’s why. Mast Cell Activation Disorder is another one that goes with it. More people with TCS! Yay (well, not really yay, but y'know, lol). I usually have to explain what a tethered cord is! I have myelomeningocele, so it definitely goes hand in hand with it, but most still seem to have trouble comprehending what it is. I've never seen it brought up in any comments I've ever come across, until now, so thank you. :)
Many hot shirts here: Photoxtee
